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Long Island Brain Tumor Support Group

Support Group for Patients with Brain Cancer, Caregivers and Family Members

Please join us for a FREE support group for all brain tumor patients, their caregivers and family members. In addition to support, the group provides practical and medical education from professional guest speakers. Members discuss side effects of treatment, how to properly handle emergency situations, nutrition, effective communication, and the emotions that patients, caregivers and family members experience. Refreshments are also provided.

Where: Long Island Brain Tumor Center
NSPC Conference Room
1991 Marcus Avenue, Suite 108
Lake Success, NY

When: The 3rd Thursday of every month. 5:00pm – 6:30pm

Upcoming Dates:

February 20, 2014
March 20, 2014
April 17, 2014
May 15, 2014
June 19, 2014
July 17, 2014
August 21, 2014
September 18, 2014
October 16, 2014
November 20, 2014
December 18, 2014

Note: Registration is required. To register, please contact: Tina Sapienza, LMSW, OSW-C at 212-305-5274
Tina Sapienza has been a licensed social worker with a certificate in oncology practice for more than 20 years. For the past 6 years she has been the oncology social worker in the Brain Tumor Center, NYP/Columbia. In this capacity she has worked as part of the multi-disciplinary team which includes medical oncologists, nurses, nutritionists and research coordinators with a diverse population of newly diagnosed brain tumor patients and their caregivers. Ms. Sapienza is responsible for psycho-social assessments, supportive counseling for patients and family members, facilitating support groups, and referrals to community programs.

Read Tina’s Full Bio by Clicking Here

Office: 212-305-5274
Cell: 646-419-0245

More information about the group:

A brain tumor is a unique form of cancer in that it can cause both cognitive and physical disabilities. Patients suffering from brain cancer will often experience seizures, confusion, memory loss, personality changes, difficulty with balance, loss of hearing, vision, or speech, and the loss of sensation in limbs. As a result, caregivers are often faced with the daunting task of both caring for their loved ones and dealing with the enormous emotional toll caused by watching their family members cope with the disabilities and the effects of the treatment.

Many psychosocial research studies have shown that as a result of having to meet all of the patient’s emotional, medical, nursing, financial and day-to-day needs, caregivers often become emotionally and physically exhausted, leaving them more vulnerable to depression and anxiety. Given the profound physical, emotional and social impact this illness has on the caregiver, the need for psychosocial support has been clearly documented.

Moreover, the physical toll of caring for a loved-one can be enormous. Caregivers often have to aid their loved-ones when they fall and help push them in wheelchairs when they can no longer walk. Aside from the clear emotional drain that this can have on the caregiver, it can also cause physical trauma.

In response to this, Voices Against Brain Cancer, in conjunction with the American Cancer Society, has created a support group that provides the caregivers with the safe and comforting environment to relieve some of their emotional tension by sharing their experiences, fears, and anxieties with others. In addition, caregivers also have the opportunity to learn both practical and medical information, which would help to reduce the anxiety associated with an uncertain future.

The group will discuss the side effects of treatment, tips for caring for a loved one, how to properly handle emergency situations such as seizures, nutrition, methods for effectively communicating with physicians, legal issues that arise from the illness, and the wide range of emotions that caregivers and family members experience. This support group for family members and caregivers will not only improve the well-being of those attending the group, but also the loved ones being cared for.

The support group is facilitated by Tina Sapienza, a Licensed Medical Social Worker with experience in oncology and facilitating support groups. The group is open to ANY AND ALL patients battling brain cancer, their caregivers and family members that are living on Long Island and the surrounding areas.

The group will not endorse any hospital. However, it will work with, and be affiliated with, all Long Island and surrounding area hospitals in order to provide support for all New Yorkers.

 

 
Voices Against Brain Cancer is a not-for-profit public charity recognized by the IRS under 501 (c) (3)